Marfanoid Chronicle

It's almost a year since my last post about my battle. Since my last post, I had been into series of check ups and around three or four hospitalization. It was found out that I have a "deadly" allergy to CT-scan contrasts. I was hospitalized thrice because of it, the first one was not severe, but the second and the last one was really deadly. It was then advised not to undergo the scans again. Which made it more challenging for my doctors to monitor my stents. For a year now, I honestly feel much better. There are pains once in a while, but a rest is enough and I am back on my feet. I just noticed though that severe weather temperature is not my friend. Winter this year was a bit colder than the past winter I experienced and going out was a real struggle for me. Ten minutes out in the cold and it feels like I am fainting anytime. Hence, almost whole winter I was just home. I may feel quite well recently, but inside of me, something's waiting to be repaired/ healed. That's the reason why last December, we had a meeting with the head of the Vascular Medicine of University of Aachen Clinic, where one of the Marfan Center in Europe is also located. Prof.Dr. Jacobs is a very nice and competitive doctor. We are planning a new operation this year. I am just waiting for his advice, I already had my heart and lung function tests done. I will, of course, keep you updated on what's done on me. I am quite nervous, but I trust my new doctor completely and I know God has a better plan for me for the future.