Thursday, July 27, 2017

Unfinished Business

My fight against Marfan Syndrome continues. I had my open surgery last May, wherein my aorta in the tummy region was fixed with prosthetics to remove the aneurysm. The prosthetics run from my lower rib till just above my thigh. It left me a really big scar which would forever remind me of the battle I had been. But it was not just the scar that made this memorable. The operation was really complicated and I had hemmorrhage during the operation. It was comparable to slight stroke and if it was not bad enough, I also had pneumonia and some other internal organ problems. I was in coma for almost a month. My family and friends already readied themselves for the worst. It was difficult and based on their stories, they slowly lose their hope the longer I sleep. But I survived. I woke up after around 3 weeks and 4 days but without any memory. I saw my husband beside me crying but I did not reognize him, I was just staring at him and wondering who he is and why he's crying. After a week, he brought photos of us and put it on top of my table and the memories started to come back. I recognized him from our photo and I gave him a smile. He held my hand and began to cry once again. There were lots of questions after my memory was back. Why does the date says 7th of June? My operation was on 10th of May, what happened in between? I thought they were playing a joke with me. It was two weeks after when they, the nurses and my husband, got the courage to tell me what happened during the operation. I was shocked to learn the story myself and at the same time grateful that I have survived it all. My husband thanked me almost everyday that I did not give up, that I came back. And I reassure him everyday that I did that for him, that the reason I am still here is because I still want to create new memories with him. That there are dreams and plans we have talked in the past that I want to reach with him. And what happened just made our love for each other to grow bigger and we start to appreciate each other more. (Oh, how lucky am I to be his wife!)

But I guess there is a bigger thing that God wants me to accomplish. It is still unknown for now, but I am sure there is a bigger project for me in this lifetime. And I guess that mission has started because the hospital called and asked if they can use my case in one of the medicine lectures in the university, they will use the information on my symptoms as a Marfan patient, how to detect one, and what are the medical procedures I had to go through. That is definitely my first mission, to help the Marfan Syndrome research group and the future doctors and surgeons and to save further lives in the future.

My fight is not yet finished, I am still undergoing neurologic rehabilitation in order to be able to move around without any help again. I have been through a lot and I will keep on fighting despite the pain and even if it will take longer time, I will never give up no matter what. I will triumph over this rare disease. I will create beautiful memories with my husband, my family and friends. I will continue touching lives of strangers through Pinays in Germany blog and Facebook page and groups I am in so that when my time comes, a lot of people will remember me as "Anne, the selfless one."